I have had to think hard about using this tea towel. It perfectly sums up today’s story but it has been used before, not by me but by Umaynah, on 19 June 2020, as part of a ‘Home Schooling Challenge’ that I set her. The question I ask myself is ‘Can I use it again in a Blog’? Of course I can, it’s my Blog but that is why it is called ‘Guide Dogs for the Blind (2)’, to distinguish them from each other.
Have you heard of the ‘UK Disability History Month’? Having worked for 41 years with disabled people, I never have. If I had, then I would have done some amazing things at my last job, because mosaic: shaping disability services had a very long history, being founded in 1898. It also had amazing archives. I would have loved to have celebrated Disability History Month, raised awareness….. but too late now, I’ve retired. However, if I hadn’t heard of it, who has? Talk about hiding your light under a bushel. Fact: the UK Disability History Month has run from 22 November to 22 December every year since 2010. Wikipedia describes this an an ‘informal’ event. This year’s theme was ‘Access’.
Northumberland certainly knows about it, and recognises it, because last Thursday there was a Zoom event where Dr Amit Patel was interviewed about his journey into the world of visual impairment, and life with a guide dog. It was a brilliant interview. Here was an engaging man, who could captivate an audience, who can talk ‘the hind legs off a donkey’, without prompts, who is honest about his experiences, his dark days, his funny days, his challenging days and his hopefulness. For me, it was very moving, in a really funny way, and reminded me of my friend Dave Morris who died in 2010. I have written about Dave Morris before, a leading figure in the Disability Movement and an adviser to Ken Livingstone when he was Mayor of London. When I was sorting my house, back in 2017, before moving house, I found the speech that Dave made at our AGM in 1999. Goodness me, the staff thought he was a bit radical and controversial, not what they were expecting. Re-reading it, I realise the world hasn’t really changed over the last 20 years, and the things that Dr Amit Patel talked about, Dave experienced 30 years ago. That is shameful. I have always wanted to use this speech in a Blog and I now have the opportunity. This is what Dave Morris said:
“As last night was Halloween, I thought I would start with some horror stories. My first happened in my university days, just up the M1 in Nottingham. While sitting in some hostelry, one evening, no doubt discussing some finer detail of Hegelian dialectics, somebody came up to me, as they do because if you’re a disabled person in a pub you are public property, and the following exchange took place: “I have a friend like you, he’s a vegetable”.
Now part of me likes ‘collecting’ these times when the interaction between society and disability becomes personalised. As we hurtle with gusto towards the new Millennium, the fact is that the civil rights struggle is still a live issue. It has been said that the disability movement is the last great civil rights struggle. The Disability Discrimination Act, in the same way as the Race Relations Act and the Equal Opportunities Act, has drawn a line in the sand. Our society is telling us that we should have equal civil rights. We should be able to have access to transport, to employment, to education and the Millennium Dome, in the same way as anybody else. As it is against the law to discriminate because of the colour of somebody’s skin or gender, it is now illegal to discriminate, in certain circumstances because of disability. As we all know, however, equality legislation has not disposed of racism or sexism overnight and neither will the Disability Discrimination Act.
And this is where I come back to horror stories. The fact is that still, for many of us, the unacceptable becomes commonplace. Horror stories become part of our everyday experience.
I’d like to classify myself as a pretty average, ordinary type of bloke. I work full-time (and usually extra time) in a responsible job in the voluntary sector. I earn a reasonable (but not extortionate) salary. In the same way that women still only get 60% of the salaries of men, disabled people do not command the highest salaries in the world, however skillled and experienced we are.
I am in a long-term relationship and, yes, I have a sex life. I have a range of interest outside work: cinema, theatre, football, pubs, late night philosophising after pubs. I have a strong innate belief that all of us should be able to develop our potential. The beauty (and it is beautiful) of our society is that its very fabric is about difference. The ugly thing about our society is that many of us do not realise the value of diversity and try to be ‘normal’ allowing prejudice and discrimination to flourish. Although I classify myself as average, as a disabled person I have also experienced the unacceptable reality of prejudice and discrimination:
- As a child being dispatched to a harsh and cruel institution, where wheelchairs were taken away as punishment, where you are forced to go on stupid diets and were sent away for what can only be described as experimental surgery, where the local vicar was allowed to base a sermon on the progressive ecclesiastical thesis that we were disabled because of the sins of our parents, where every day a brass plaque, announced to the world, that this institution was caring for cripples, in the name of Jesus, where other darker unacceptable things happened……..
- At my interview for a university place, when the Head of Department, after apologising for the delay in my interview for a place on an Honours Degree course, gave me a children’s book with the words “look at this whilst you wait, its got lots of pictures”. It obviously rubbed off because the Teletubbies are my heroes.
- Being prevented from having a job in the Civil Service because it would not look good for a disabled person to work with the general public
- Being asked by a colleague what hospital I lived in, and then overhearing a subsequent conversation with another colleague about how severely disabled I was “but he’s so intelligent”
- Being refused a drink in a pub because “we don’t have any facilities for people like you”
- Being spat at in the street
- Being told on numerous occasions, when I challenge these instances, that I have a chip on my shoulder
As I said earlier, I tend to collect these examples because they illustrate, for me, the road we all move along. I believe that much has changed over the last few years and the unacceptable is less commonplace. Our organisations exist to make sure this continues to be the case. The new language of empowerment, equality and rights is an expression of the fact that we are no longer prepared to accept the unacceptable; that we are moving centre stage; that we can be in control and in charge but also work together”
So thank you, Dr Patel, for a wonderfully entertaining evening. If it wasn’t a time of Coronavirus I wouldn’t have travelled to Northumberland to see him, too far away, but, with Coronavirus, this event was made more accessible. Amazing. However, I have three of my own ‘stories’ about Guide Dogs which I want to share.
My first story was about the interview I had in 1989, for a job as Manager of a brand new organisation, managed by disabled people, campaigning for disabled people. I’d never been at an interview like this. One panel member used an induction loop, another had a Guide Dog. It was going very smoothly, the dog was sleeping on the floor, snoring loudly. It looked like he was dreaming when he started to move, shuffled around, twisting himself in the wire of the induction loop. The microphone was pinned to to my jumper. As the dog moved and twisted, the front of my jumper appeared to be moving forward. It looked like I was wearing an inflating bra. I tried to lean forward to compensate, but I also started to giggle. I didn’t know what to do but thought there must be some kind of political correctness for a situation like this. But, of course, the owner of the Guide Dog didn’t know what was happening. In the end, I said “Could we stop for a moment? The dog has tangled itself in the induction loop and I need to untangle the wires”. As I did this, I got rid of all my giggles and I got the job.
My second tale is of Meryl’s dog who was renown for a voracious appetite, and sweet tooth. As we queued to get a coffee, the dog swiftly put its paws on the counter and ate half a chocolate cake. I’ve never seen a dog move so fast.
And the third occasion was not funny, at least not funny to me. Jim was a worker with a Guide Dog, who I supervised. We were chatting in my office when there was a strange noise. “What’s that noise?” Jim asked.
“Your dog is being sick on my carpet” I replied.
“Oh” he said. “Where?”
In a firm voice I said “By the door, a huge amount and when we open the door it will have to move over that pile of sick. Jim, I am telling you, do not move until I tell you”. It was so disgusting. And there was I on my knees scooping it all up, while Jim laughed because there was nothing else he could do.